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Voice Post: Bone Scan

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Aug. 10th, 2006 | 11:33 pm

VoicePost
1267K 6:45
“Well I can’t say I have had any shortage of intense days lately or stuff that is not challenging in terms of my cancer and fighting it. Yesterday I spent most of the day getting a bone scan and a CT [computed tomography] scan. Both of which are not fun at all. The bone scan – first you have to be injected with radioactive material that accumulates in the bones and then about three hours later they scan it and then you can see basically anything that shows up is bone activity. In this case, the tumor.

I’m going to post that picture here so you’ll actually be able to look at it. So, anything that is a sort of shade of gray and darker is bone activity. It’s really the dark stuff that is of concern.

The CT scan is no fun. Because you get to go and get an IV and they flood your body with iodine for a brief period of time. It’s an incredibly foreign experience. The first thing that happened to me is my throat started burning, then my bowels started burning and then my bladder and then my veins. Then they take a picture of you. In this case, they only take a picture of my abdomen and pelvis, so it doesn’t take that long. But, I do not enjoy that at all.

Then after getting the radioactive injection, and after I went to the CT scan, I went back to get the bone scan. There was a really, really nice gentleman there and we kind of hit it off. I was taking photos on my phone to photoblog this – by the way, you can check that out at http://www.splashblog.com/prostatecancer (I’ll post that later, probably tonight or tomorrow)

I asked him to make a printout of the bone scan, which is what you see here. After I got the scan, he kind of came in and he was hanging his head down kind of low and he said, “Oh, I’m sorry I can’t print it. My printer is botched at the moment.” I kind of wasn’t sure he was being honest and neither was my mom and neither was Bethleigh and they were both with me there during the tests. Funny thing, nobody wanted to say anything. I didn’t want to say anything to scare them, and they didn’t want to say anything to scare me. So nobody said anything. So we walked away. Then my mom, bless her heart, came back and asked him, and said, “Is your printer really broken or did you not want to show Jeremy the results of the bone scan?” He apparently broke down into tears and told my mom and said that he had never seen, he’d been there over thirty years and he’d never seen a tumor so advanced in a young man such as I. And he just felt probably pretty horrible about it.

It turns out actually that this bone scan at least from a laymen’s view – from the first one I had in the hospital compared to this one, it is actually not as bad. So, I know it takes a long time for the scans to look any different, and my tumor can be way down and my bone can be filling in with bone, so it may not be as bad as it looks.

But that was sad and interesting to see sort of how family reacts and someone you don’t know reacts to bad news.

But, nonetheless, I still feel physically pretty good. I still feel very active. My only problem is still trying to recognize the fact that it takes me two to three times longer to do anything that I want to do and that I don’t have as much time to do it in because I need to rest and because I have got other things going on – like acupuncture treatments, other medical treatments, and trying to stay physically fit.

So sometimes I get frustrated in terms of how productive I am, but I think that’s sort of, really a curse of our society: to be so driven to produce that we lose track of the moments that we can really enjoy and take time experiencing before we’re sort of on to the next thing. So, there’s a good lesson in there for me.”

Transcribed by: cauch

(Continued from Transcription Above)
That’s about it. Today has been kind of tough. Just thinking about my bone scan. You can see on the scan that there are some substantial black blotches in my pelvis and spine and sternum, and all of that is kind of going down and the only part that I’m a little concerned about is the one at the base of my skull. I’m not sure that was there before. I’ll know a lot more next week when I see my doctor.

Don’t be too scared looking at this. It does look like it’s looking better. It takes a long time to change. I think it’s kind of cool I can share this with you guys. It’s one of the interesting things about all this technology. That’s it for now. This is Jeremy signing off.

Here is a picture of my most recent bone scan,
click the image to enlarge it
Bone Scan

Anything medium grey to black is considered either tumor
activity or fast bone growth (replacing the dead tumor).
This image is actually a little exaggerated since I had to scan
a transparent sheet of plastic to make this. There is more
variation of grey on the original. This scan also looks like
there is less grey and black than the original scan I saw in
the hospital about 4 months ago.. So thats GOOD NEWS!

You can also check out my photo-blog of yesterday here:
http://www.splashblog.com/prostatecancer

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Comments {10}

re: August 10 voice blog

from: jessicavioletta
date: Aug. 13th, 2006 01:28 am (UTC)
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Hi Jeremy,

I have not checked in here in a long, long time. I am glad I did today, I got an email from Htaw Soe and he asked how you are so I was checking in to see to send him an update. He said he just got back from the Boat House.

It is really nice to hear your voice. It's helpful to hear you explain the CAT scan proceedure and what it feels like. My dad has been having to get them pretty regularly since his car accident, so it is good for me to know exactly what it is all about. Thanks for sharing your process with us, I am sending you all my strength.

I am going to check-in more here. I hope you are having a good night at your party tonight! Congratulations!
Love Jessica

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jerumi

Re: August 10 voice blog

from: jerumi
date: Aug. 14th, 2006 12:09 am (UTC)
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Thanks Jess, I'm bak in contact with Htaw Soe.

I also really hope that everything is going well for your Dad. My prayers and best wishes are heading his direction too.

J

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I think it looks better too

from: lanihorn
date: Aug. 13th, 2006 08:05 pm (UTC)
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Hi Jer,

I remember your last scan. After hearing the story about the technician, I have been worried about what this scan would look like. I think it looks better than the last one too. I am eager to hear Dr. Ryan's assessment. Keep us posted!

Love,

Lani

Reply | Thread

jerumi

Re: I think it looks better too

from: jerumi
date: Aug. 14th, 2006 12:10 am (UTC)
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Me too, I see him on Thursday.

xo
Jer

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Hang in there bro,

from: anonymous
date: Aug. 14th, 2006 07:09 pm (UTC)
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I can hear your positivity in your voice post. I also understand how totally upsetting all of this must be. You are doing great... I mean I am totaly amazed by your strength, will, and commitment. Keep it up brother!

--Josh.

Reply | Thread

jerumi

Re: Hang in there bro,

from: jerumi
date: Aug. 15th, 2006 06:23 am (UTC)
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Thanks Josh, I appreciate that. I do feel positive most of the time. Sometimes I'm a wreck but mostly I'm really enjoying life, every moment of it as much as I can.

Love
Jer

Reply | Parent | Thread

Improvements are good news

from: jenmullen
date: Aug. 14th, 2006 10:56 pm (UTC)
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It is so good to hear that there are improvements... However or wherever you are finding your strength to heal keep it up.

Jen

Reply | Thread

jerumi

Re: Improvements are good news

from: jerumi
date: Aug. 15th, 2006 06:13 am (UTC)
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I refind it every day, every moment. Sometimes its stronger than other moments but generally I have more of a reverence for life than I ever have.

J

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Kolakoski

(no subject)

from: kolakoski
date: Aug. 14th, 2006 11:21 pm (UTC)
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It's a wonderful site Jeremy! I wish I had a more substantial comment to make, but right now, I'm just in awe of the voiceposts and the image. I knew the technology was out there, but I didn't think it was so accessible.

Now that I've seen the site, I'll be tuning in daily, I'm sure.

Reply | Thread

jerumi

thanks Mike :)

from: jerumi
date: Aug. 15th, 2006 06:11 am (UTC)
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Thanks for tuning in. I don't actually get posts up every day but I try to do at least one per week. Its nice to have another lj user (and family member in the near future) checking out my blog.

~J

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