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Clinical Trials?

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Aug. 22nd, 2006 | 11:43 am

I thought I'd elevate this to a new post since its some very important information about clinical trials. This was previously posted as a response to my sister Lani in the last voice post area. If you don't already know how to read responses to each post - which is like a conversation, just go to the "Leave a comment" below to leave your own comment or click the number between the brackets {} next to "Leave a comment" to read the conversation that has been happening under that particular voice post.

I forgot to mention the two trials that are available right now at UCSF that my doctor thinks would be worth trying. They both include the chemotherapy drug "Taxotere" (Docetaxel) and Prednisone - to counteract the negative effects of chemo (Dad used this on Dogs a lot) plus either 1) "Avastin" an anti-angiogenisis drug or 2) an immune therapy drug called "G-Vax."

Of these two trials I am more inclined to go with G-Vax. I'm not so impressed with Avastin and neither are most of the people that I have talked with so far. I also like the theory behind immune therapy more than I like the idea of stopping the growth of all new blood vessels in my body..

The major problem with this G-Vax trial is that it is randomized and that I may end up in the control group that just gets the Taxotere & Prednisone. The upside to it is that at the end of the trial I can get the G-Vax. Another con is that if I end up getting G-Vax that I will no longer be eligible for a different, and more popular immune therapy drug called "Provenge." But I'm not able to receive Provenge now anyway because I am still on pain medication (opiates).

As it turns out, my Doctor also thinks that the G-vax trial is the best trial at UCSF for me. Now the question remains whether or not there are other trials out there that are better..

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Comments {2}

I lose touch for a few lousy months . . . .

from: honu143
date: Aug. 22nd, 2006 11:38 pm (UTC)
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. . . .and then, this?! You get engaged, plan a wedding, fight cancer, start a series of parties. Okay, Jeez, I'll do better at staying in contact!!

BTW, it's Osha, here. I was glad (of course) to hear/read that the Music Wood campaign is looking good, and sad (of course) to hear/read about your illness. I have doc friends and will ask them about clinical trials.

Mostly, I just wanted to say "hi" for now, and offer one more voice of support. I leave early in the AM for my daughter's wedding in Philly, but I should have Web-access at the hotel.

And a little bit of good news -- a producer just optioned the film rights for the slavery article. Most options never make it to the screen, but you never know. It would be a great way to reach a huge audience that knows nothing about modern slavery. And it started with you telling me to check out the situation in Brazil. So, thanks, bro!

Hang in there. I'll beam my best healing and love rays out your way! And I'll make sure Andre does the same (he's photographing my daughter's wedding). Love, light, and good thoughts straight from the heart.

Osha

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jerumi

Re: I lose touch for a few lousy months . . . .

from: jerumi
date: Aug. 23rd, 2006 04:04 am (UTC)
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Osha! Thanks man, its great to hear from you!! I just sent you a brief thank you note for the donation and THANK YOU again for that. I really appreciate the love rays headin my way and please give Andre my best. AND congrats to you and your daughter :) - thats great!

I'm also really excited about the movie. Will they touch on Sr. Dorothy Stang? Keep me informed and I hope to talk with you soon.

~J

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