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On the way to Portland

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Aug. 22nd, 2006 | 09:04 pm

Phew, what a day. It seems like everything happened today. First we spent most of this morning getting ready to drive north to some Hot Springs and then up to Melanie's place (my uncle David's significant other) in Eureka but then I got a call from another prostate cancer specialist in Portland, Dr. Tom Beer , who is going to give me a second opinion. Sorry Melanie! We want to come up soon!!

So now Bethleigh and I are at the airport waiting for our flight. Beth has been a total angel. Very patient and supportive with all of the changes in plans. I only hope that we have enough time to not focus on cancer or treatments for a few days and just enjoy ourselves.

The rest of the day was paying bills, phone calls with insurance, alternative medical practitioners, cancer survivors who we met last night at the Center for Attitudinal Healing. What a Godsend, Beth decided to motivate us to go there last night and it turned out that they had a group for "couples with metastasis." The people that we met there were great. It means so much to meet other people who are going through similar journeys. And some of them have done this a long time and have volumes of information. And then more phone calls with the American Cancer Society, e-mails back and forth about setting up Healing the Roots (my new non-profit foundation), and with my siblings -- My sister Lani has been doing research on clinical trials for me from Ireland between meetings.. What an Angel! And everybody has been so helpful today. And Thanks to Laura (my other Mom!) we are set up in Portland with Dad.

AND, we registered for a civil ceremony and marriage license at San Francisco City Hall for September 22nd!

We are really excited about that. We can only have a total of 2 witnesses at the ceremony but you know that you are all invited to our wedding parties and we may also have a small celebratory lunch or dinner after we get our license on the 22nd.

Phew, time to slow down now and get on the plane.

Love,
Jeremy

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Comments {11}

Shana

(no subject)

from: girlinthemoon
date: Aug. 23rd, 2006 05:11 am (UTC)
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Wow, busy day! Lots of news. I'm glad for you both that this all kind of fit into place, that Dad happens to be in Portland right now. The group you went to sounds like a really incredible resource and great connection, just what I know you were looking for. I'm glad for that, too. Good for Beth for doing the motivating!! it was really nice to be at your place on Sunday, I enjoyed myself :) Congratulations on registering for the civil ceremony, too :)

Love to both of you,
Shana

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jerumi

(no subject)

from: jerumi
date: Aug. 28th, 2006 05:14 am (UTC)
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Thanks Shana :)

We were really glad that you could make it. As you can see in the blog, and you have probably heard from Dad, things are going well on our trip..

Love,
Jer

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Hi

from: kilv
date: Aug. 23rd, 2006 04:02 pm (UTC)
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I hope you have a great couple of days off.

I am so glad you are finding your way through this process, and am excited that you are goingto see one of the top doctors!

Also, I am testing to see if this post shows up under my new free account.

All my best, have a safe and relaxing journey. Good luck in Portland!

--J.

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jerumi

Re: Hi

from: jerumi
date: Aug. 28th, 2006 06:57 pm (UTC)
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Thanks Brother,

I'm doing the best I can. It feels a lot better investigating my options and "taking the bull by the horns" so to speak.

We're in Washington now and will be seeing the head of the Prostate Cancer Program at UW, Dr. Bruce Montgomery tomorrow.

But today we're taking it easy, going on a little hike and some strolls around town..

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Re: Hi

from: kilv
date: Aug. 28th, 2006 08:55 pm (UTC)
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Thanx bro... now i can see your responses (now that I have an account)!

Enjoy your time off.

My best to everyone....

-J

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Kolakoski

(no subject)

from: kolakoski
date: Aug. 23rd, 2006 11:00 pm (UTC)
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Congratulations on setting a date for the civil ceremony! September's a wonderful time of year.

I'm glad you two found the support group for "couples with metastasis." Beth Leigh told me about it that night after you returned, and it sounds tremendously helpful. It must feel so good to be around people who "get it"--if you know what I mean.

Good luck on your visit with Dr. Beer (great name!), and enjoy the NW.

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jerumi

(no subject)

from: jerumi
date: Aug. 28th, 2006 05:12 am (UTC)
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Thanks so much Mike!

We had a very good consultation with Dr. Beer (and we went for Beers afterwards :)). It means a lot, more than I expected, to be with others and to hear from others that have survived cancer.

Beth says hi. We are in Seattle now and are loving it. On Tuesday I go to see Dr. Bruce Montgomery for a third opinion. Its really empowering for me to investigate all my options. Thats what I'm good at. I feel like I can make a more informed decision. And the reality is that the nobody know what exactly is going to work so it makes a lot of sense for Beth & I to understand what options I have and to decide from there..

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This was supposed to be an email.

from: honu143
date: Aug. 24th, 2006 06:36 am (UTC)
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But I'm in Philly and don't have your current address.

Hi Jeremy,

Here’s the response I got back from Susan Lutgendorf.

I would suggest finding a good QiGong healer. One that I know of who has participated in research is Master He of the World Institute of Self Healing organization. I just looked for him on the web and it looks like his office is temporarily closed. I have studied with Master Chunyi Lin in Minneapolis who does spring forest QiGong and does a lot of amazing healings for people- long distance and over the phone- but I would suggest that your friend look around for this sort of person locally. It looks like he is on the west coast and that area must be full of healers.

Hope this helps. I’ve never heard of QiGong, but maybe you have from exploring alternative medicine. Portland is great. My non-getting-married daughter lives there and we visited in June. It was 105 F in Phoenix and in the 70s and 80s there. I don’t know what you can and can’t eat right now, but if good coffee and great breakfasts sound good, try Zell's: An American Café, 1300 SE Morrison, Portland, OR 97214, (503) 239-0196. Here’s a link to more about Zell’s: http://tinyurl.com/g57h6 .

As the Rev. says: Keep hope alive!

Osha

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jerumi

Re: This was supposed to be an email.

from: jerumi
date: Aug. 28th, 2006 05:07 am (UTC)
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Ok Osha, I'll check out Zell's website. I have actually been studying and practicing Qigong and Taiji for years. In fact I think its the primary reason that I felt so healthy for such a long time before I was diagnosed and it is how I was able to hike up and down multiple hills of 2000 foot elevation in Burma for 7 days straight in early February '06 with only about half of the blood in my body.

I do a qigong meditation every night to purge the cancer from my body. I purge it with a sound "Yu" and shake it off my bones like snowflakes..

Thanks for sending this along.

~J

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Re: This was supposed to be an email.

from: anonymous
date: Aug. 31st, 2006 07:26 am (UTC)
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Back in the desert.

Soon after forwarding Susan Lutgendorf's email, I read your LiveJournal profile and saw the info about Qigong. ". . . shake it off my bones like snowflakes. . ." Beautiful and powerful image.

How did your meeting with the UW doc go?

Osha

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jerumi

Re: This was supposed to be an email.

from: jerumi
date: Sep. 1st, 2006 07:12 am (UTC)
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Thanks Osha, that image just recently came to me. It helps, I think, to clearly picture the cancer leaving my bones / body in a simple and easy way. I also often picture the injections and drugs that I take as infusions of reinforcements (of all different sorts including LOTR style armies, Quetzalcoatl like figures, light beings and other things) into my immune system that help it do battle with the cancer..

UW also went great. My most recent voice-post gives a detailed update.

~J

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