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Voice Post: Part 2: the G-Vax trial, my health & time management

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Sep. 12th, 2006 | 11:13 pm

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“(continued from below)

They recommended G-vax, which is immune therapy. Similar to the polio vaccine, where they take dead prostate cancer cells and inject them into my body in a way that my immune system can identify them and sort of help program my immune system to attack the prostate cancer in my body as if it’s a foreign body and help rid my body of it.

That’s something that I have felt good about for a while in terms of a theory – I like using our own immune systems to battle things in our bodies. It does much less harm; although there are side effects, it is not as toxic as other substances and it seems more natural.

The important thing is that I will also get a high enough dose of Docotaxel that is a great start in terms of trying to address this cancer and beat it back.

It is randomized so there is a 30% chance that I will not get the G-vax but at the end of the trail, I will get the G-vax anyway. Also, very importantly, it closes the least number of doors, so if that doesn’t work, I can still do the
anti-angiogenic drugs or the gene therapy drugs and other combinations, either on a clinical trial or off protocol.

The important thing is that I start getting treatment soon. This disease snuck up on me before and I can feel it, a little bit, coming back. I have a little bit more bone pain, and some feelings are reminiscent of before, like fatigue and sorts of waves or sensations that feel like, “whoah, what’s going on in my body?” and “I’ve got to rest.”

Rest is still a really hard thing to make sure that I get enough of and balance that with physical activity, which I also really need to do, much more than sitting, sitting in front of a computer or sitting around, you know, doing nothing. It’s probably better if I lay down, get enough sleep, get my body moving while I’m still feeling good, and get my blood moving while I’m still feeling good, and then back off at night and away from other activities that would be really fun but I really don’t have the energy to do.

I did pretty good in L.A. but travelling is hard because when you are so close to feeling normal, or I am so close to feeling normal, I get excited and want to live my everyday life, but it turns out that I can’t. I have to be very careful, measuring my energy and not doing too much.

I’ve been talking about this a lot, and it’s certainly a chronic disease in our culture in terms of overextending ourselves and in my case, I just can’t. I don’t have an option unless I want to die, and I certainly don’t want to die.

Those of you that call me and offer to do things, you know, either recreational things or fun things or to help out, and if I don’t call you back, it’s not because I don’t want to. It may just be that I am just feeling like I need to take a step back and not be as involved.

So please, call me again and remember those things that you want to do.
If there’s anything that you want to do to help us out, help me out or help Beth out in our daily lives when I start getting chemo, please do.

But don’t expect me to coordinate it because I have enough on my plate; so that takes some diligence on the part of friends to be proactive in calling and coming back, but I am asking you to do that.”

Transcribed by: cauch

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Comments {3}

Thanks for the update(s)

from: kilv
date: Sep. 13th, 2006 06:12 pm (UTC)


I ask you take Two steps back, and get some rest. I know how burnt out I can get when runningt on all cylinders after much travel. So take it easy for a breif time. Thats hwta you can do for me... 8 hours of sleep per day, okay?

I'll look for your next posts soon.

With Love.

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(no subject)

from: stillimage
date: Sep. 13th, 2006 08:08 pm (UTC)

Good to hear from you. Hugs

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(no subject)

from: kolakoski
date: Sep. 13th, 2006 11:06 pm (UTC)

There's a lesson for all of us--take a step back and take care of yourself!

You truly are an inspiration, and I'm sure everyone understands you are doing what is best for you (as you should).

Continued best wishes,

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