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Voice Post: a lovely life today and chemotherapy tomorrow

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Sep. 24th, 2006 | 10:21 pm

920K 4:58
“Well, it’s the second day after our wedding and I am still feeling that kind of joy, and nothing can change the wonderful state of being that we’ve both been in over the last few days.

Even though I start chemotherapy tomorrow, it’s just been so wonderful now, and it’s been pretty easy to stay in those moments, and believe me, I’m really cherishing them.

I’ve been preparing today , you know at the end of the day, by taking some medicine to prepare for taking Docotaxel (or Taxotere® is another word for it) tomorrow.

So, I go into the hospital about 9:45 and meet my doctor and then I get a teaching and they’ll tell me about what’s going on, and I’ll get the chemotherapy about 11:45 tomorrow, and then stay a couple of hours to monitor me.

One of the thing I have to do to prepare is take Dexamethasone which is a drug that I studied for wilderness medicine and something I would only have to take is if I have to deal with HACE or HAPE which is high altitude cerebral edema or pulmonary edema and it’s the drug you take with you when you climb mountains.

But, in this case, it’s another kind of mountain.

That metaphor seems to be sticking with me, and it is to prevent the real severe side effects of the chemotherapy. I haven’t taken that yet, but I’ll take it today, and sometimes for about 24 hours, you get real weird mood swings. If I start acting crazy, I apologize in advance; I already prepared Beth.

Yeah, but you know, I certainly can’t say I’m excited about it but I have to start something to kill this cancer, and this is a great first step.

Oh, I guess I haven’t said to many people or anyone on this blog, but I did not get the G-Vax arm of the clinical trial but I am doing the Docotaxel which is the standard care.

At first I was kind of disappointed about that but I’m not now because what that does give me is more opportunity to use certain herbs and other supplements which are very effective at making Docotaxel even more effective, and it’s less of a risk. Hopefully this will work and I won’t have to do anything else.

In the meantime, I am preparing, doing more research, identifying other doctors and other cutting edge therapies that I can either get here or if not, get somewhere else.

That’s what is going on. I’m sure it’ll be a whole different thing tomorrow when I get into it.

I’m certainly scared but I’m not dwelling on it, and that seems to be the best, well, just sort of, not even the best, but the way that I am functioning, and that feels good.

Anyway, that’s it for now.

The first three days are days are rest for me, and the days I’ll need the most help and be the least available to promptly respond to much email or phone calls, but you can try, and I’ll come back to you.

The next few days are sort of, Day 4 through 8 are sort of in-between days when I’ll start to get a little more active, and then Day 9-21 I will be much more active. Hopefully. That’s kind of the plan.

Those of you that are willing and able, we’re going to probably need some extra help. My mom is here this week, well, actually, the next while, until October to help out, and Beth starts the location where she is working tomorrow, and she’ll be gone until 6. Depending on the day, we’ll need support.

Please check in with us when you can.
Okay, lots of love, bye-bye.”

Transcribed by: cauch

Tom took this picture, more to come soon!
Beth & Jeremy

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Comments {11}


from: kilv
date: Sep. 25th, 2006 03:58 pm (UTC)

Congrats once again... you make a wonderful couple!

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Re: Wonderful!

from: jerumi
date: Oct. 3rd, 2006 06:02 am (UTC)

Thanks Bro, it was wonderful :)

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from: lanihorn
date: Sep. 26th, 2006 03:28 am (UTC)

Jer & Beth,

What a gorgeous picture! What a beautiful and happy couple!



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Re: Beautiful!

from: jerumi
date: Oct. 3rd, 2006 06:01 am (UTC)

:) + :) = :-D

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Hey, 3 for 3 on sib comments :)

from: girlinthemoon
date: Sep. 26th, 2006 05:45 am (UTC)

The picture looks great, I can't wait to see the rest of them. Know you have all of my best wishes, love and support as you traverse this next part of the path. I love you both!


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Re: Hey, 3 for 3 on sib comments :)

from: jerumi
date: Oct. 3rd, 2006 06:00 am (UTC)

Hi Shana, it was great to have you there Sista.


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(no subject)

from: kolakoski
date: Sep. 26th, 2006 06:39 pm (UTC)

Congratulations Jeremy. We're so happy for you two, who, indeed, make a beautiful couple--just look at that picture!

Good luck with the new treatment. Our hearts are with you.


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(no subject)

from: jerumi
date: Oct. 3rd, 2006 05:59 am (UTC)

Thanks Mike :)

We missed Ya but we hope to see you soon! The tx is going okay so far..

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You're married!!

from: honu143
date: Sep. 27th, 2006 06:41 pm (UTC)

Congratulations! It's great to see the picture of you two -- just sorry I wasn't able to be there and share the happy day. Don't bother writing or posting back right now; I know you're probably dealing with the chemo side effects. (I hope the Dexamethasone is working!)

Much love to you both. I'm looking forward to meeting you, Beth.

Oh, good news on the slavery front (okay, that sounds weird): Jose Rivera is doing the screenplay adaptation of the RS article. He wrote the screenplay for "The Motorcycle Diaries" and has written many plays, so he should do a good job with this.

Love from the beautiful Sonoran desert,

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Re: You're married!!

from: jerumi
date: Oct. 3rd, 2006 05:58 am (UTC)

thanks Osha :)

We certainly had a great wedding and so far the chemo is tolerable. Actually on Monday it was the compazine, anti-nausea med, that caused me the most trouble. It was a horrible, crawling out my skin feeling that subsided after about 6 hours..

Since then the chemo has been okay, I'm a little fatigued and have a few other side effects but so far so good.

That is VERY EXCITING to hear there is more interest in the slavery story in Brasil. You know, it was like knocking my head against a brick wall when I spoke out it in a grand jury in Florida about it when GP was indicted. I am so happy that you have carried this story as far as Rolling Stone and hopefully even farther!!

With Love & admiration,

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apples n' oranges

(no subject)

from: applesnoranges
date: Feb. 22nd, 2007 04:09 am (UTC)

Beautiful photo.

She's a good catch, I can tell. ;0)

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