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Voice Post: Mixed messages on new bone scan

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Nov. 29th, 2006 | 12:32 am


VoicePost
633K 3:31
“Well I’ve got some news, but mostly it feels like a mixed bag, like mixed messages.

The results of my bone scan in terms of what the radiologist said was that basically from the head up and also from the pelvis down, things look about the same. In between, in the thoracic area, there might be a few more metastases.

But then I spent the day yesterday with my oncologist and he said the radiologist’s report was not really that accurate when it comes to interpreting prostate cancer and that what we were mostly looking at were bone flares.

Although some of them look like hotter spots all over the body that only indicates activity which could be potentially healing bone, not new tumor.

Needless to say, it was disheartening to read the radiologist’s report but what it really sounds like is there’s not much of a difference at all although there may or may not be a couple of new metastases.

What is most important is how I feel, and I’m feeling better, I have less pain, more mobility and more energy. I’m going with the idea that my body is healing and beating the disease, not more of it is growing.

Other people have said that these early bone scans don’t really necessarily mean much and it really takes a long time for bones to change.

That’s the new, I’m going to post this scan
Actually by eye it looks like a lot less than the last scan, but that is because in the actual image I have the contrast is a lot less than the last one, so the last one looks like a lot more and this one look like a lot less.

That was how I was feeling until I read the radiologist’s report and talked to my doctor.

I had chemotherapy yesterday and it’s starting to hit me but mostly with the fatigue and a little bit of aching. I also got a Lupron shot and Zometa, so I anticipate things being kind of slow and more difficult this week but so far so good.

Next week Beth and I go on our belated honeymoon and we’re really excited about that – we’re heading down to Baja.

So that’s all the news I’ve got right now.

Thank you so much to those of you who have been commenting – I’m sorry I haven’t gotten back to everybody, but please know your comments are valuable

Thanks a lot
Bye-bye.”

Transcribed by: cauch
Here is a copy of my most recent bone scan. The transparency that I was given has much less contrast compared to the last one so it is really hard to compare with this new scan. But if you only compare the darkest spots on both you can kind of tell where the hot spots and potentially new mets are. I also took some photos on my phone of the much more detailed digital images that my oncologist was looking at. I will post them on my splashblog account soon.

click image to enlarge it

Bone Scan Number 3 

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Comments {2}

Not bad news

from: lanihorn
date: Nov. 29th, 2006 04:37 pm (UTC)
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Hi Jer,

Given Tia's post about what to expect on this early bone scan (which sounds like it was corroborated by your docs too), the results here don't seem like a huge surprise. I do take a lot of comfort in the way you feel and in the way you looked when I saw you a few weeks ago. You do have more energy and mobility than you did, and that could indicate that some of those "hot spots" are simply other kinds of bone activity and not just "mets." (I'm learning to speak cancer.)

Anyway, lots of love to you and Beth. I hope you have a great trip to Baja. We're on our second snow day up here in Seattle, so the girls are really enjoying this surprise family time!

Hope to talk to you soon,

Love,

Lani

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from ethicsatty@verizon.net (Uncle Michael)

from: anonymous
date: Dec. 4th, 2006 07:09 pm (UTC)
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You and Beth are rarely far from our thoughts. Thank you for keeping all of us informed of your journeys. Especailly enjoy the one to Baja.

Michael and Bobbie

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