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Voice Post: The Party, Community & Treatment Update

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Apr. 24th, 2007 | 11:17 pm

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“Well, I have to say it was an awesome party – thank you so much to everybody who participated in arranging it, coming, and donating. We raised approximately 12,000 dollars which was three times as much as we thought we would to raise, and not only that, it felt for me and it sounds like it felt for a lot of people like a very healing and loving community event.

I just want to say that that’s exactly what I was hoping and looking for in terms of something for Healing the Roots because Healing the Roots, even before it became a foundation that was focused on my healing, I always envisioned it as something that would create a sense of space for our community, a community of activists to have a much greater sense of health and community.

I think that a lot of times, people have, people that work together in such intense situations, often risking their lives together, have a very strong sense of camaraderie and that roughly translates into a feeling of community because there is a lot of love and trust shared, but there is not a lot of infrastructure and support for those people. So when something happens - if something goes wrong, if somebody gets ill or somebody gets in trouble, then we’re always scrambling to do something, to help out.

Healing the Roots, to me, in terms of the long-term, is an organization that will really help cultivate those aspects that focus on the long-term and developing a real sense of community between people and places because I think community also has a very strong relationship to place. It’s where we live, it’s where we get our food, it’s what we want to see healthy in the future, and all of that.

Anyway, that was really wonderful.

There’s a little bit of new news. This is not so positive.

My chemotherapy is no longer working, so I’ve had to change gears, and after a very, very difficult last week, I spent the night in the emergency room on Wednesday night because I had a mild fever and I have been having breakthrough pain sometimes twice a day for a couple of hours and it is almost unbearable and this is already after doubling the amount of morphine I was already taking.

It’s a potential sign that there is more metastasis. It certainly feels like it and my numbers indicate that also.

I actually went and saw my oncologist Thursday and we’ve decided to take a break from chemotherapy clinical trials and try something else that is experimental but much less toxic on my body which I’m excited to try. It’s looking like it will be GMCSF (Granulocyte–Macrophage Colony-Stimulating Factor) which is immune therapy which will help stimulate my immune system to target the cancer which I’m philosophically a lot more aligned with and excited about.

Anyway, it was just really wonderful to have a very, very difficult week and to go out to the party and have such a wonderful time and then finish it off at the Goldman Environmental Awards on Monday and celebrate all the people who are doing great work around the planet and see my friends again.

Anyway, that’s about it, I’m running out of time.
Stay tuned.”

Transcribed by: cauch

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Comments {4}


(no subject)

from: solares
date: Apr. 26th, 2007 12:57 pm (UTC)

so glad to hear the celebration went so well
so many thanks to all those that made it happen
i wish i could have been there
i miss you jeremy
and look forward to seeing you in june

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(no subject)

from: jerumi
date: May. 6th, 2007 07:54 am (UTC)

Great to hear from you Mateo. Looking forward to all of your stories from Afrika!

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Your life in Germany

from: sangomanena
date: Apr. 29th, 2007 08:29 pm (UTC)

Hey Jeremy,
you might not know this, but you have a life here in Germany. Or at least you take part in a german life. How ever you want to put it. Since my job as a nurse I have been very aware of the beautifull moments life can give you and now I found myself sharing them with you. Like yesterday, when I was hiking on the big island where I live, it was one of the first sunny and warm days this year and the air smelled so much like spring and the light made everything look like it had been freshly painted. It was such a perfect day and a perfect feeling being there at this very moment and I thought: how much healing might be in it if I could just transfer this wonderfull feeling across the ocean and right into your body? No answer to this question yet, but I keep trying to send all my good feelings to you and maybe some of it finds it way without getting lost on the long trip.
I really enjoy listening to your posts. It is so good to hear your voice. And it seems so much more true to me, than reading the same words. Funny, hm? Well, humans are funny. I mean look at us...but that is another story...
Jeremy, I am not a big writer (took me almost a year to get these lines done) but I send you and Beth all my love and strength for the coming steps...moves...hikes...or what ever you guys will be up to next,

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Re: Your life in Germany

from: jerumi
date: May. 6th, 2007 08:01 am (UTC)

Hi Nena!

Its nice to hear that I take part in life in Germany too! Thanks for sending all of the good healing energy, I think that it really does make a difference and that although my healing is a personal journey, it is a collective healing as well.

I'm also glad that you like to hear my voice. I don't often hear whether or not people listen or read my posts. I'm drawn to the voice as well as it seems less edited and more natural. Its easy to change the meaning of a word just by changing the intonation, even in English.

Have you been on the boats lately? I miss the fun and the great work that we sometimes find ourselves a part of on the boats..

Peace & Love,

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